Saturday, January 9, 2010

Weekend Update

My little man is doing well.  He is getting so big, and stronger everyday.  His PDA (patent ductus arteriosus) is still open and causing some problems.  He has to work a little harder to breathe, still has some dips in his oxygen saturation, and some moments when he breathes too fast, and is having some trouble with fluid retention in his body and lungs.  Every couple of days, the doctors give him lasix, a diuretic that helps him get rid of the excess fluid, and that seems to help.  He seems more relaxed and not as labored in his breathing.

They have also taken the nasal cannula off for now to see how he does without it.  They had weaned him down to a very very low flow, and he was doing fine, but whenever he took a bottle, he needed extra oxygen to help him out as he worked on breathing and eating at the same time.  So we will see how he does.  They may need to put it back on if he is not able to eat and gain weight like he has been.

Also, he is up to three bottle feedings a day (out of eight feedings).  Most of the time, he does really well, and drinks all or almost all of it (he gets 60 ml of milk every three hours and often drinks at least 45-50 on his own before the remainder goes in the feeding tube).  I was able to feed him yesterday, and I can definitely tell a huge improvement.  He is getting more coordinated, and is learning not to take things too fast.  He will chug a few sips, then take a few deep breaths, then drink some more.  If he seems like he is still able to do this well without his cannula, they may start to increase his bottle feedings this week.  We're certainly hopeful!

Thank you all so very much for your prayers and encouragement.  We are so thankful that our son is doing well, and trusting in God's wonderful plan for him!    

2 comments:

  1. I am so happy to hear and i am still praying for everything to work out in the Lords time

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