Tuesday, March 30, 2010

What if I Had Given Everything?

Do you ever have regrets?  Do you ever feel like you are simply going through the motions of life?  Well, I don't want to go through the motions, and then suddenly find myself at the end of this life asking, "What if I had given everything?  What if I hadn't been so concerned about myself and my wants, and my needs?  What if I had been completely, 100% sold out for Jesus Christ?"  No, that's not the life I want.  I want to give everything I have now.

This might hurt, It’s not safe
But I know that I’ve gotta make a change
I don’t care If I break
At least I’ll be feeling something
‘Cause just ok is not enough
Help me fight through the nothingness of life


I don’t wanna go through the motions
I don’t wanna go one more day
Without Your all consuming passion inside of me
I don’t wanna spend my whole life asking
What if I had given everything?
Instead of going through the motions



No regrets , Not this time
I’m gonna let my heart defeat my mind
Let Your love, Make me whole
I think I’m finally feeling something


Take me all the way
The Motions, Matthew West



What do you say?  What do you want from this life?  What are you going to say to God when you stand before Him in heaven one day?

Monday, March 29, 2010

"Not Me!" Monday



Welcome to Not Me! Monday! This blog carnival was created by MckMama. You can head over to her blog to read what she and everyone else have not been doing this week.  GOOD TIMES! :)

Yesterday before church, I definitely did not take one look at my daughter's tangled, unruly mess of hair and decide she was in desperate need of some grooming.  No, I am not so concerned that she look the part of the adorable, clean-cut PK that she is, that I would be so impulsive as to decide she needed a haircut right then.

And even if I did, I certainly would not rely on my own untrained self to do the job.   Haircuts are the job of professionals, not fed-up, spontaneous moms who only have a few minutes before it's time to leave for church!  No, I would never scoop her up and immediately proceed to trim her precious locks, right in the middle of the living room.  That would be crazy!

This is definitely something a cautious woman like me would never do.  And then I definitely would not spend the rest of the afternoon taking pictures of said 'do, admiring my handy work.  Nope, not me!

 



Friday, March 26, 2010

Story Time

Our public library has a story time for babies every Friday morning.  Although it is not something we are able to do every single week, when we are, it definitely proves to be a good time!  I first started taking my daughter when she was only four months old, and it has been such a joy to see the changes in her from then to now.

When she was just a small baby, she loved to sit quietly and watch all the people, especially babies, around her.  As she got older, she began to pay more attention to the loud, slightly flamboyant, joyful woman who reads the stories with a great deal of passion and excitement.  Now that she is getting to be a very active, curious, mobile toddler, sitting still and quiet in my lap for fifteen minutes straight is quite a feat.  I often have to let her munch on cheerios while we listen to the poems and stories, finally letting her loose when it's playtime.

After precisely fifteen minutes of stories (and sometimes songs), the leader gets out a whole host of toys, books and beach balls, and lets the babies "play together."  In the past, my daughter would never leave my side during this time.  Even once she was able to crawl, she was timid, and simply watched everything going on around her.  And now?  Now it takes everything in me to keep her in my lap until it's time to play.  THEN, she has an absolute blast.  She walks (or runs) all around the room, chases beach balls, watches other kids and explores her world.  Today, she even walked up to another mom and had a seat in her lap!   


It is so much fun to watch her as she carries around beach balls that are bigger than her, learns to share with other kids (we're still working on that one, haha!) and becomes more active and social.


I'm so very proud of her, each and everyday!!


Wednesday, March 24, 2010

Cardiology Update

Yesterday, we took my son for his follow up visit with the cardiologist.  First, we met with the nurse to do all his check-up work and tests.  She checked his weight, length, and head, attempted to get a blood pressure.  All the normal stuff.  Then she did an EKG (something we never did in the hospital), which, honestly, was surprisingly simpler than it sounds. 

Anyway, after lots of waiting and paperwork and tests, we finally sat down with the doctor.  His first words to me? "So, why do you think you are following up with me?"  What?  What kind of question is that?  Doesn't my son have heart defects that need to be monitored?  So I replied, "Well, I was told he had a couple different heart defects, but that we would need to follow up on and monitor his VSD."

The doctor went on to explain that all his echocardiograms done in the hospital (I'm not even sure how many he had all together.  Maybe four or five) showed conflicting reports.  They did not all show a VSD, and when it did, it was small and muscular (a good VSD to have, as they are very likely to close on their own).  Only one echo showed an ASD (another hole), but no one was concerned about that, as it is something that is very common and wouldn't cause any problems anyway.  And apparently, an early echo showed coarctation of the aorta, which is a pinching or narrowing of the aorta that obstructs blood flow to the lower body.  Subsequent echos, however, showed no signs of this.  This heart defect was something we had never even heard anything about!

Anyway, after looking at all of his echos from the hospital, his doctor looked at his EKG and saw no problems.  He then felt his pulse in his arm and leg, and they were both great and very strong.  He then listened to his heart and heard absolutely no murmur at all.  His conclusion?  He does not have any heart problems to be concerned about and would not require anymore follow-up!  Can he guarantee that he does not have a small VSD? No.  If he looked today and saw that he did, would he do anything about it? No!  This was great news, but I still had questions about his blood pressure, and although we are closely monitoring it and his nephrologist is following it, I will feel better to know for a fact that it is nothing to do with his heart.  So we are going to go back in three months and do another echo when he's a little bigger, and specifically look for a VSD and/or any coarctation of his aorta.

I am praying that he is right and by the time we go back his blood pressure will already be getting better, and the echo will show no problems at all and we can officially say he is no longer a cardiology patient! 

Thank you for your prayers as well!

Tuesday, March 23, 2010

This Invention...


...is keeping me SANE!!

Of course, bringing home a new baby has its share of challenges.  But bringing home a preemie, adds a whole other unique set of challenges.  Some babies come home on a heart monitor, some with a G-button (a feeding tube), and all with special instructions and unique needs.  My preemie came home on multiple medications.  Making sure he takes and keeps down each dose of medicine has been one of our biggest challenges so far. 

Until now.

This, my friends, is Reliadose.  It is a specially designed bottle that allows me to give my son his medicine while he is eating.  He eats just like he would at any other feeding, while I slowly dispense the medicine into his mouth at the same time.  He takes the medicine and does not even realize it.

I don't think you understand just how BIG of a deal this is!  For the first month that he was home, we had been fighting him to take his medicine.  We tried so many things: letting him suck on a bottle nipple and then dispensing the medicine into the nipple, dispensing it directly into his mouth, giving it before feedings, after feedings.  It seemed like no matter what we tried, something went wrong.  If he was too sleepy, we couldn't get him to take it.  If he was awake, he wanted to eat and would choke and gag on the nipple, or the medicine.  If we dispensed it directly into his mouth, he would spit it out.  If we gave it after a feeding, he would gag and spit everything up, milk, medicine and all.

Needless to say, we were growing quite weary.  And I hate to admit this, but this handy dandy device was in our cabinet the whole time!  I didn't think we could use it, though, because it comes with a syringe that we can't use.  The syringes we use are more exact and measure smaller doses.  Anyway, when I finally pulled it out, determined to find a way to use it, we discovered that our syringes fit into the bottle, just like the one that comes with it!

And so, at least this part of our life is simple and hassle free now, thanks to some very wonderful friends who always take good care of us.  :)  Now, if only there was a quick and easy way to check his blood pressure!!  

Monday, March 22, 2010

"Not Me!" Monday



Welcome to Not Me! Monday! This blog carnival was created by MckMama. You can head over to her blog to read what she and everyone else have not been doing this week.  GOOD TIMES! :)

Because I am always prepared and always have everything I could possibly need when venturing out and about with the kids, I would never leave the house without an adequate change of clothes for each of them.  So of course, I would never be caught at the mall with only a clean shirt for my daughter and no pants.  Nope, not me!  So when she leaks out of her diaper, I would certainly not have to strip her down to her diaper and drive straight home for clean pants.  No, that would never happen!

And because I always learn from my mistakes, I would certainly not leave the house two days later without a clean pair of pants for her, again.  That's ridiculous!  So then, when she leaks out of her diaper at the doctor's office, all over her pants as well as mine, I would not be caught in the exact same predicament! No, not me!  And I definitely did not have to strip her down to her diaper again, and carry her out to the car pant-less.  Nope, not me!  I am always much smarter and thoroughly more prepared than that!!

What have YOU not been doing this week??

Thursday, March 18, 2010

Life is Good

Right now, life is good!

After a horribly long winter, with a ridiculously inordinate amount of snow, it is finally, FINALLY warm and beautiful outside...


My son is home with us and adjusting wonderfully...


I have amazingly good friends, who are so fun to be with, love my kids like their own, and make me laugh...

But mostly, right now I feel like the long months spent in the hospital and uncertainty are behind us and quickly becoming a distant memory.  I am starting to realize the magnitude of what God has brought us through, and I am so thankful, and continue to be amazed.  Even though I knew God would bring us through it and I was (and still am) trusting in His plan, to look back now, now that it's over, I still can't help but stand in complete awe

As we start to move past the last few months, however, and begin to move on with our lives, I am reminded of two things.  First, life will not always be good.  Yes, we got through a hard season of life, and things are great now, but things are going to get hard again.  It's just a fact of life.  It's not always fabulous and happy, and certainly not always easy.  Solomon speaks to this in the book of Ecclesiastes:
"When times are good, be happy;
       but when times are bad, consider:
       God has made the one
       as well as the other.
       Therefore, a man cannot discover
       anything about his future."
Ecclesiastes 7:14

And so I am truly enjoying life right now!  But I am always trying to grow in strength and wisdom, so that when the hard days come, I am more prepared than the last time.  Which brings me to the second thing I am reminded of.  I cannot forget what God has done for us in these past months.  And I especially cannot forget everything that God taught me in the midst of the hurt and the pain and the fear.  I have grown as a person, mother, wife, and follower of Christ, and when times get hard again, I have to remember what God is capable of, and the lessons He showed me along the way.  

Right now, I feel like all is right with the world.  But when things get turned upside down (and they will), I will be a stronger woman, ready to face whatever comes. 

Sunday, March 14, 2010

Full of Joy


I love that this sweet girl of mine is so full of joy.


Always embracing life with curiosity and a sense of adventure.

And I love how much more full of joy my life is, just because she's in it.

"This is the day which the LORD has made;
         Let us rejoice and be glad in it."  
Psalm 118:24 

**Photos courtesy of our friend Will at Easler Photography!**

Saturday, March 13, 2010

Still Learning

If I began to list all the many many lessons I learned during the three months my son was in the hospital, I would go on and on and on.  But one lesson that was particularly challenging, especially considering the lengthy duration of our stay, was learning not to compare. 

With so many babies, both premature and full-term, surrounding us in the NICU, it was always easy to compare my son to another.  I will never forget having this very conversation with one of the nurses our second day in the hospital.  I was gazing at some of the other babies, and she quickly came over and began to remind me that my baby was an individual and not necessarily facing the same kinds of difficulties as other babies.  "Don't let other babies or other parents upset you.  Just because one baby struggles with something does not mean that your baby will."  Even though this was the furthest thing from my mind at that moment, I must have looked worried or anxious, and she wanted to quickly reassure me. 

Although I understood what she was saying, and appreciated her concern, I never really had trouble with this kind of comparison.  Just the opposite, in fact.  The longer our stay became, the more I began to look around and see all the babies doing "better" than my son.  The more babies that came and went while we sat and waited.  And after about 13 or so, I lost count of the number of babies who were our NICU neighbors, only to move on and go home.  It got harder and harder to stay positive as we waited and waited, and sometimes felt like we weren't making any progress at all.   And as unhealthy and unnecessary as it was, there were inevitably those moments when I would look at a baby younger or smaller than my sweet son and feel frustrated that they were already going home, while we had no end in sight. 

Reminding myself that my son was a totally unique individual, fearfully and wonderfully made exactly as God planned and intended became a daily occurrence.  Even though I knew, knew for a fact, that comparing his progress to other babies was completely irrational and absolutely did not help me cope one single bit, I still did it!  Again and again I had to catch myself, and ask God to forgive me for not trusting in His plan for my son.  God knew before my son was even born what kinds of health problems he would face (and overcome) and how long it would take.  And in His good and perfect timing, when he would be ready to come home.

So now that he is home with his family, you would think this would all be behind me.  You would think that by now this would be a lesson learned and I could check it off the list.  Unfortunately, I am a slow learner and this is one I am still learning each and everyday.  Although my son is doing fantastic, I now find myself comparing him to other four month olds.  "Is he as big as so and so yet?  How come they can do that, but he can't?  She's so much younger, yet already doing such and such!"

And so the battle continues.  I am constantly reminding myself that I absolutely cannot expect him to be exactly where other four month olds are in size and development.  But as a mom, it absolutely breaks my heart to think he is not "where he should be."  The thing is, he is his own person, who has faced more in his short four months of life than some adults, and so he will grow and develop at his own pace.  And of course, I love him exactly the way that he is. 

So I am hoping and praying that with the Lord's help I will learn this lesson, and move on.  I would never EVER want my children to think that I don't think they are "good enough" or "smart enough" or "strong enough."  Who knows, maybe I am the only mother to think these thoughts.  But at least I am aware of it and working on it, right?  And maybe one day I will have learned this lesson once and for all.